About Us

The FACS Forum Ireland was setup in response to representations by parents of children affected by anti-convulsants.

The Forum aims to

  1. Advocate for better warnings and information from the Department of Health in Ireland and related agencies on the side effects to expectant mothers of drugs that contain valproate, which is a widely used drug used mainly in the treatment of epilepsy and in bi-polar disorders.
  2. To seek better rights and supports for those families in Ireland who have been impacted by FACS.

The Forum pursues these priorities by raising awareness of the issue with government, policy makers, regulatory bodies, medical representative bodies and other professionals with a role in patient safety. It actively seeking adequate supports for people affected by FACs and their families.

Members of the Forum include:

Disability Federation Ireland (DFI)

Epilepsy Ireland (EI)

Genetic and Rare Diseases Organisation (GRDO)

Medical Research Charities Group (MRCG)

Organisation for Anti-Convulsant Syndromes Ireland (OACS Ireland)

Migraine Association of Ireland (MAI)